Real life Stories

Go Folic! is very grateful to all the people who have volunteered to share their stories to help the campaign. Some have spina bifida themselves or have a child growing up with spina bifida, others have lost a baby due to a fatal neural tube defect. They want to help ensure all women know how important it can be to take folic acid at the right time and dosage.

Do you know a publication, programme or website which might feature a story and promote the folic acid message? If so, please contact Go Folic! by clicking here and we will be happy to help with any publicity.

Margaret's story
Margaret's story

"I was born with spina bifida. When I was five, I asked my Mother, 'When am I going to be able to walk properly?' After a pause, she said 'Well maybe you never will.'

"From then onwards, spina bifida became part of what I was, and throughout my life I have always been aware that it should be secondary to who I am."

Margaret took part in the 'The Great Folic Acid Debate' at the Norfolk Food Festival 2011, inspiring the audience to support Go Folic! Read the full article!

Elaine's Story
Elaine's Story

"I am an epileptic mum of 4 who took Folic Acid prior to conception, unfortunately I was not aware that my anticonvulsants meant that I needed a higher dosage of Folic Acid, as a result my youngest, Tia, was diagnosed with Spina Bifida whilst in utero at 17 weeks gestation..."

In November 2011 Elaine was presented with a Go Folic! Preconceive Community Award by Janet Groves of LanesHealth at the National Assembly for Wales. Read the full article!

Helen's Story
Helen's story

"I have a personal experience that has made me very passionate about promoting folic acid. In 1999 I gave birth to my first child, Alexandra had spina bifida and sadly passed away at 18 months due to complications. I have since had three very health sons and I'm sure folic acid played in important part in their lives...."

Helen is now a student midwife and has been making sure her fellow students all know about folic acid. Read the full article!

Danny's Story
Danny Mills

"My wife Lisa and I lost our baby son Archie to spina bifida. Archie's condition was so severe that he had no chance of survival. I would like to do anything possible to help to save other families from facing the trauma we did. .."

Danny Mills is a former Premiership footballer, England International and a Patron of Shine, the charity which leads Go Folic! Read the full article!

Jenny's Story

"Having had a sister who was very sadly stillborn in 1981 due to Spina Bifida and Hydrocephalus I was fortunate to know about the importance of taking folic acid. I really hope that the Go Folic! campaign succeeds in raising awareness and reducing the heartbreak that NTDs often cause..."

Jenny knew she need to take the higher dose of folic acid due to her family history. Click here to find out which dose you would need to take or read the full article!

Jodie's Story
Jodies story

"My partner and I had waited ten years to try to start a family. After only 4-5 weeks I did a test and was amazed to see it was positive! I went to my GP and she prescribed folic acid, but at this point I was already, roughly 26 days pregnant..."

Jodie sadly lost her first baby due to a rare Neural Tube Defect. Like many women, Jodie had not known the importance of taking folic acid from before conception and she volunteered to help Go Folic! to spread this vital message. Read the full article!

Have you got a story you could share to help Go Folic? If so, we would love to hear from you so please contact Go Folic!

 

www.gofolic.co.uk is a new website. We aim to make it one of the best.

We welcome your ideas!


Go Folic! is led by:

Spina bifida • Hydrocephalus • Information • Networking • Equality - SHINE (Registered Charity No 249338), covering England, Northern Ireland and Wales. Scotland is covered by the Scottish Spina Bifida Association - SSBA (Scottish Charity No SC 013328).

Our special thanks go to the Go Folic! Women's Nutrition Project in San Francisco for their inspiration and support.